"We count our blessings, and see each day we have with him as a gift,” says Caelen's parents, Lowell and Kam Choy.
When Caelen was 10 months old, doctors said that he might not live past his second birthday because of a rare disease: an incurable form of Spinal Muscular Atrophy (SMA), which is a genetic condition that causes progressive muscle degeneration and weakness, eventually leading to death.
Caelen turns three soon. He is precocious and often charms everyone with his generous heart and witty humour. In his world, nobody should be left out.
Despite his devastating and heart-breaking prognosis, he is often the life of the family and brings much joy and laughter.
It has helped the family carve out a new normal amid the uncertainty.
Commissioned by Our Better World